Last night I attended a fundraiser for this guy….
Gidion (which means fighter/mighty warrior of God) was born at 34 weeks and his early arrival was the start of an amazing journey fraught with health issues but covered by grace and love. The first step in the journey began when Gidion was diagnosed at birth with a Tracheal Oesophageal Fistule (TOF) with Oesophageal Atresia (OA) which basically means that his food pipe ended blindly and did not make it all the way into his stomach. You can read more about his story HERE!
Gidion was eventual diagnosed with FANCONI ANEMIA (FA). FA is a very rare disorder that affects the bone marrow in children, which necessitates that they receive a bone marrow transplant once their bone marrow fails. FA children are also very susceptible to cancer, especially leukaemia. After sharing the diagnoses with Gidion’s parents the paediatrician went on to say that the doctors were very concerned about Gidion and did not think that he would live through the night but Gidion our little warrior not only made it through the night but has made it to this point….
Gidion is a very happy little boy and is so sweet. When he turns those big green eyes onto you, you feel like the only person in the world. When he smiles, his smile lights up the world! Make no mistake he is pure little boy…..he loves playing with cars and loves animals. He is pizza mad and has been known to wake up at 3 am and ask for doughnuts!! He has boundless energy and gets up to mischief in the blink of an eye. I have been spending quite a lot of time with this little guy and he has touched a place deep within my heart. He has a quiet and gentle spirit (when he is not jumping up and down on the sofa) and has an incredible capacity to love. He has been through so much in his short life but he has fought bravely and through the grace of God and an incredible amount of prayer and love has come through each challenge triumphantly.
In April 2012 Tuschka and her husband’s divorce was finalised leaving Tuschka responsible for Gidion’s medical costs. The medical aid has assisted where possible with Gidion’s medical expenses but cannot cover all the costs involved with the healthcare of a child with FA. So his very brave mommy (and my awesome friend) Tuschka arranged a fundraising event to raise funds to assist with all the medical costs.
The sweetest moment was when Tuschka and Gidion thanked everyone for coming and Gidion’s “Love you” was just the finishing touch on an amazing evening. I have never been in a room filled with people where I felt that I could reach out and physically touch the love.
Tuschka, my friend you can be very proud of yourself. Last night was a resounding success. A testimony to your love for Gidion, a testimony of 200 peoples love for the both of you and above all a testimony to God’s love and unwavering grace. The journey has been difficult and the road ahead is still long but you and Gidion are never alone. I love you!!!
If you would like to make a contribution to Gidion’s medical expenses please see the banking details HERE.
|With my mom!|
|Surrounded by love|
|With one of his doctors...|